Wednesday, November 04, 2009

A pair of shoes.

I am wearing a pair of shoes. They are ugly shoes. Uncomfortable shoes. I hate my shoes. Each day I wear them, and each day I wish I had another pair. Some days my shoes hurt so bad that I do not think I can take another step. Yet, I continue to wear them. I get funny looks wearing these shoes. They are looks of sympathy. I can tell in others eyes that they are glad they are my shoes and not theirs. They never talk about my shoes. To learn how awful my shoes are might make them uncomfortable. To truly understand these shoes you must walk in them. But, once you put them on, you can never take them off. I now realize that I am not the only one who wears these shoes. There are many pairs in this world. Some women are like me and ache daily as they try and walk in them. Some have learned how to walk in them so they don't hurt quite as much. Some have worn the shoes so long that days will go by before they think about how much they hurt. No woman deserves to wear these shoes. Yet, because of these shoes I am a stronger woman. These shoes have given me the strength to face anything. They have made me who I am. I will forever walk in the shoes of a woman who has lost a child.

Author Unknown.

The first time I read this was on Holly's blog & ever since then it has really stuck with me....Wanted to share for those who may not have ever seen this. My baby boy would have been 4 years old in 24 days..I am thinking about my Logan A LOT. I think about him a lot anyways, but he has been on my mind even more than usual. I am trying to think of something really really special to do this year for his birthday. Of course we always do the balloons sent to him with little notes attached for him, we get a birthday cake for him, we visit the cemetery...If anyone has any ideas feel free to leave me a comment with some ideas.

Too bad I wont be planning something really fun for my sons 4th birthday party. I wonder would he like super heroes & comic books like Jake did at that age? His big brother had his 4th birthday party at Chuckie Cheese & all his presents were either spider man or the Incredible hulk.

As always Logan I love and miss you with all my heart.

♥Love your mommy♥

Tuesday, October 27, 2009

Wednesday for Wyatt



I am joining in on Wednesday for Wyatt this week. I met Wyatt's mother this weekend and she very sweet. I copied and pasted the portion below. Please do the same.

Here we go! Our second Wednesday for Wyatt! It’s quite simple to participate. All you have to do is copy and paste this post on your blog, and come back here to link up with MckLinky! Once you do that, your all set to win a great giveaway. Kristi, on of the dear women who follow my family's story has generously donated some handmade buckeye's jewelry. Thank you Kristi!


Over the last week we have gotten 123 new signatures! Over 100 of those we got last Wednesday alone. And we had 34 wonderful bloggers link up... I can't wait to see how much Wednesdays for Wyatt will grow this week!


For those of you who are not familiar with my family and what we are trying to achieve, here’s a brief run down...


Our son Wyatt was diagnosed with a fatal condition at our 18 week ultrasound, but chose to carry him to term. We waited to meet our son with love, all the time praying we would get to see him alive.


On June 1, 2009, Wyatt made his way into the world by c-section. To our amazement he had a faint heartbeat and was breathing! He died two minutes later, but I’ve clung to the two minutes my son and I breathed the same air since his passing.


Upon calling to get a copy of Wyatt’s birth certificate, I found out he was listed as a stillborn. You would assume it was a mistake (like I did), but there was no mistake. According to the definition of live birth in Tennessee my son was not “alive enough” to be deemed a live born baby. His two minutes of life has gone unrecognized by my state, and I intend to change this piece of legislation so I can solidify the validity of my son’s short life.


Wednesdays for Wyatt was created to help spread awareness for a law that needs to be changed, as well as to generate more traffic to my petition. So if you’re reading this, thanks for taking the time to help our family!


This contest will be open today only. I will close MckLinky down sometime before midnight, so make sure you get linked up ASAP to make sure you are entered to win this giveaway! Thanks for helping everyone, and good luck.



MckLinky Blog Hop


Thursday, October 15, 2009

Oct 15th pregnancy and infant loss rememberance day

Pregnancy and Infant Loss Awareness Pictures, Images and Photos
Please remember those who have lost babies today. Light a candle for them. I will be lighting a candle for my 3 little ones (2 miscarriages and Logan), my nephew Tristan, my good friends daughters, and other babies who had to leave this earth too soon. I love and miss you Logan and you will never be forgotten.

Light your candles at 7 tonight and there will be a wave of light all across the world....

Pregnancy and Infant Loss Awareness Pictures, Images and Photos


http://www.october15th.com/

Saturday, August 29, 2009

The Secret Garden Meeting-August



If you created a bedroom for your baby tell us what it was like.

*I was only 5 months pregnant when we found out Logan would not live very long. We were waiting to find out the sex of the baby before we started buying things or decorating. Logan had a room,but there was no crib, we had not painted it, and other than a couple of neutral outfits I had bought before the 20 week u/s you could not tell it was a babies room.

Did you have it ready for them before they were born?

*No. We knew well in advance that we would not have to have a room ready for a baby....

If so how did you cope coming home to it without your baby?

*I can imagine it may be very difficult to come home to a room that was all decorated in anticipation of a baby staying there....I don't know whats worse coming home to a fully decorated baby's room with no baby or never even getting the chance to think about decorating your babies room because you knew the baby you were carrying would never get to stay there.

Did you pack it all away?

*nothing to pack away..

What is your baby's room now?

*It is now my daughters room. Its purple and girlie with a crib. The crib might as well not even be there since she sleeps in the bed with me.

If you lost your baby after they had come home what is it like going into there room now?
*n/a

If you are trying to conceive again, or are pregnant again how do you feel about setting up another room before your baby is born?

*It felt good to finally get to decorate that room for a baby. It was something I had been wanting to do for several years. Of course deep inside I thought about how it should have been Logan's room all along, but we never got that chance.

Thursday, August 13, 2009

I have my very own angel giveaway!

Please visit I have my very own angel blog and enter for a chance win their very first giveaway in celebration of having 25 followers! Also when you enter to win you must become a follower, leave a comment saying you found them via Logan's Mommy Nicole *aka*Nickel Pickle.

Good luck!

Wednesday, August 12, 2009

I wish..

I wish when I talked about you Logan people would not look at me with this look of pity, or get real quiet because they don't know what to say.

I wish people would not think I am "over it" because I don't stay in bed and cry all day.

I wish people knew how very much you are on my mind all throughout the day.

I wish there were someone I could talk to in person about how much I miss you, instead of only being able to talk about you here or at my anencephaly support group.

I wish I could say I have found a reason for all the pain and hurt in my losing you.

I wish I would get off my rump and do more out in the world in your honor and memory.

I wish a lot of things....

I wish most of all you were still here with me.

I love you son.

Wednesday, August 05, 2009

Proud big brother.

Look at the smile on Jake's face holding his little brother. There was not a big brother more proud of his baby brother than Jake was that day. He instantly fell in love with Logan. I can remember it like it was yesterday. Seeing Jake's face light up the first time he got to see his baby brother. It was wonderful. I will never forget that smile....He had wanted a brother for so long and he finally got one. Too bad he only got to spend a short amount of time with him....
Jake is still very proud of his baby brother. Every night he sleeps with his "Logan Bear". This is a teddy bear of Logan's that is dressed in some of Logan's clothes he wore while he was alive. Jake will not go to sleep until he has his Logan bear in his arms or sometimes he will make a little spot in the bed for Logan bear to sleep and he will tuck him in. Even almost 4 years later he does it every night. Sometimes I wonder how long he will do this? Will he become embarrassed to do this when he becomes a teenager? Who knows. All I do know is he would have been a wonderful brother to Logan just like he is to his baby sister Chloe. He doesn't talk about him as much as he used to, but I know I can always talk about Logan with Jake & that is something very special to me.

Saturday, August 01, 2009

The secret garden meeting



How do you see or imagine your baby/ies now that you do not have them with you?

I imagine Logan as a healthy, happy, free spirit. I really have no clue what the afterlife may be like so I just have to imagine it is very peaceful & wonderful. I also see him in nature & all its beauty....

How did the loss of your last pregnancy affect your choices/decisions about the birth of your subsequent pregnancy?

After losing Logan I a lot more conscious about what I put into my body & making sure I had the healthiest place to nurture and grow a child. It took me a couple of years to feel ready to try again because I was so scared & heartbroken I could not imagine being pregnant for some time. I wanted to do everything right with my next pregnancy and birth. My child was going to be # 1 & there was no way I was going to lose another child. I decided early on I was going to practice attachment parenting by wearing my baby, child lead weaning from breastfeeding, co-sleeping, no cry it out or strict schedules. I like to refer to it as parenting from the heart. All the things I wanted to do with Logan, but never got the chance to do.


Monday, July 20, 2009

This day 4 years ago..

July 20,2005 was the worst day of my life. This is the day 4 years ago that my world came crashing down. This is the day I was told the little baby growing inside of my belly would not live. This was supposed to one of the happiest days of my pregnancy, the day we find out if we are having a boy or girl. We did find out we were having a boy, then we were told 5 minutes later that he had a very serious birth defect. Anencephaly. Probably the single worst word you could hear come out of your doctors mouth. After leaving the docs office we walked right past the receptionist desk where I usually stop to make my next months appointment..I didn't know if I would be back so I didn't even bother. This is the first of many days in which I would stay in bed & sob for hours. I never went back to my job after that day. I made my husband call and tell everyone what was going on because I was simply not strong enough to do it myself.

This day 4 years ago was the worst day of my life. D-Day.

Tuesday, July 14, 2009

Mclinky blog hop. 3 Things you didnt know about Logan


***

1.Logan pee-peed all over the doctor as soon as he was born!

2.Logan had a little bit of hair on his ears, it was so cute!

3.Logan got his name from the X-Men Wolverine. My son Jake was a huge x-men fan his favorite one was Wolverine whose real name is Logan.
***

MckLinky Blog Hop

Friday, July 10, 2009

Where I visit my son


I used to visit Logan's grave at least once a week, sometimes even more right after his death. A few months after he was born I started working on the other side of town and I didn't drive by the cemetery as often so I would only get to visit about every 2 weeks. I always made sure his grave looked perfect & I was constantly looking for little things to take out there to leave on his headstone. I even ordered his base on the headstone wider than normal because I knew I would want to leave him little things & I wanted room to do so. Every season he would get a new flower arrangement in his vase. Even the people who lived across the street from the cemetery would talk to me because I was out there so often. After his first birthday my visits became further apart. My life was a mess, I was going through a hard time with being separated from my husband, I was working a lot and didn't have as much time to visit. After I had Chloe I was so busy with her that months would go by before I would get a chance to visit. I felt awful. I felt like I was abandoning my son!

I would not even take my fiancee Daniel out there with me to visit because I didn't want him to feel uncomfortable & honestly that was my place to go to visit my son & to talk to him & let it all out if I needed to..Well the other day I decide its time to take Daniel to the cemetery with me. I had some new flowers I wanted to put in his vase. Let me tell you he was so sweet! He was not the least bit uncomfortable about it. He immediately started pulling up the taller grass that was around the base, cleaning the bird poop off, and was taking pictures of Chloe standing by the headstone. He held me and told me he loved me as we stood there. I didn't even cry, for once.

If you know me you know I love Winnie the Pooh! My house is like a mini shrine to Pooh. So that is why we have Pooh with the angel wings, I have Christmas ornaments that are identical to the Pooh's. He has a little honeybee hive wind chime hanging in the tree right next to his grave.


I remember the first Christmas after Logan died one of my friends wrote me this really nasty email because I had not been there for her & she was going through a really rough time & her daughter had a nasty cold on Christmas and how bad it sucked for her, blah blah blah. I was so angry at her that not even one month after my son had died and she was saying all of this to me that I wrote her back saying how sorry I was that I had not been there for her & I was sorry that her daughter was sick on Christmas day, but I had to get up that Christmas morning & visit my son at the cemetery!!!!! Sorry I just had to share that, its amazing how self centered and clueless some people can be. At a time when I needed her to be there for me she was making me feel bad because I had not been there for her...

I was driving by the cemetery tonight on my way home from a friends house & I started thinking about his funeral.Then I started to cry. I don't know why, but I always get to crying when I am thinking about him driving down the road. Maybe its because I am alone & I know I can just let it all out with no one there to see it..I start to remember saying good-bye to my precious baby boy Logan at that cemetery. He didn't even look like his self..his chubby cheeks were not so chubby, his beautiful skin color was not the same, he looked like a completely different baby. Of course he was still beautiful, but I was glad I had several framed pictures of him all around the funeral home so everyone that had not gotten the chance to see him while he was alive would see how much more beautiful we was while he was alive. He looked so tiny laying in his coffin. When he was alive he seemed so big! He weighed 6 lbs even, but I strongly believe had he not been missing most of his head (since that is the heaviest part of a babies body) he would have weighed close to 9 lbs.

My dear sweet Logan,

Mommy misses you very much my sweet angel. Sending you kisses. MUAH!

Love,
Mommy.

Wednesday, July 01, 2009

Under the Tree-June.


We are doing under the tree a little different this month, its a little "get to know you".

So here are my answers.

Hair Color: Dark Brown.

Eye color:
Blue.

Profession:
I work at a large car auction in the transportation dept.

Relationship status:
Engaged.


My Favorites:

Favorite color:
Black.

Favorite movie:
Oh I have tons..what genre? I love anything with Johnny
Depp & Tim Burton movies.

Favorite animal:
I love my chickens :)

Favorite store:
The thrift store!

Favorite childhood memory:
Spending the Summer on the lake fishing,
swimming, and going to the beach.

Favorite hobby:
Working on random crafts. Scrapbooking & some sewing
& quilting.

Favorite song/singer:
Again way too many to name! I love all kinds of
music & groups. I could listen to Sublime & Smashing Pumpkins all day.


Favorite book/author:
I love the Twilight books.

Favorite school subject:
History

Favorite vacation destination:
The beach.

Favoritefood:
I love Asian food, sushi.

Favorite restaurant:
Just one? We have a local pizza place that makes the
NY style pizza! Sooooo good!


This or That


Coke or pepsi :
Diet coke

Beer or wine:
mmmm beer!

Coffee or tea: I like both.


Apple Juice or O.J.:
I like both.

Summer or Winter:
Summer Summer Summer

Cats or dogs:
Dogs

Salty or sweet:
Both!

Plane or boat:
Either one.

Morning or night:
Night.

Money or love:
Love (but a little money never hurt either, haha just kidding!)

Breakfast or dinner:
Breakfast.

Forgiveness or revenge:
Forgiveness

House or apartment:
House

Like to cook:
Love to cook!


Have You Ever:


Got a speeding ticket:
Yes 3!

Wished you were someone else: At times....


Cried during a movie: I cry in every movie!


Describe yourself in one word:
Different...

Biggest fear:
Losing another child or close loved one.

Biggest mistake:
Allowing myself to be treated like crap by so many men.

Your proudest accomplishment:
My beautiful children.

Dream job:
Mid-wife.

Special talents:
I don't know that I have any..

Where would you rather be at the moment? Relaxing on vacation.


Famous person you want to meet:
Johnny Depp

Song to be played at your funeral:
I don't even want to think about that!

Tuesday, June 30, 2009

Look look look!!

I am so excited! I won a blog makeover from Holly mommy to Carleigh. Christina just finished making over this blog and I think she did a WONDERFUL job! I am really pleased with how well she did. She also made a blog button for me if you would like to grab it.

So again I want to say thank you to Holly for the giveaway & thank Christina for the great job you did on making over this blog. I LOVE IT!

Thursday, June 18, 2009

The story of Ariel Elisabeth Part 1.

Ariel Elisabeth is the daughter of a very good friend named Azariah (or Zarey as we usually called her). Zarey was the owner of the Anencephaly Support group I joined when I first got Logan's diagnosis of anencephaly. Zarey had lost her daughter to anencephaly in 1972. She was such a kind and caring woman. You could tell she genuinely cared about you & wanted to be there for you. She was very wise & could answer just about any question you might have about anencephaly. When Logan died she was the very first person to send me a card and a little necklace with Logan's name on a heart & a beautiful silver frame with a blue bow. I am looking at that frame right now with Logan's little picture in it. I knew I could always count on Zarey to be there for me, lend an ear, talk to me when I was feeling down, and give it to me straight if need be. haha. Sadly Zarey passed away from lung cancer and the website she had set up for her daughters has been closed. I miss her very much. There is no one else like her, she was a one of a kind..The other night I was looking through some loose papers in Logan's scrap book and came across a print out of her daughter Ariel's story.

So here it is, the story of Ariel Elisabeth.

From the time I was a little girl, I always dreamed of being a mother.
Early 1972 I found out I was pregnant. I had just finished my first of two
college degrees in English/secondary education with a teaching minor in French.
I was very studious, but although I achieved a degree with honors at the
University of Wisconsin/Milwaukee, I also wanted very much to have a child. I
started a teaching job at a local high school, but I seemed to always be sick
and growing larger too fast. Back then, there were no ultrasounds or nor test
like amniocenteses. There were no pre-natal test that are routine nowadays. I thought
I was carrying twins or triplets, but my ob-gyn and nurse midwife were reluctant to perform an
x-ray. At about 16 weeks of pregnancy, an x-ray became inevitable. It revealed
two things:first that I was probably carrying a daughter, second, that my child
had a fatal defect incompatible with life, called anencepahly. I still
remember when the MD and CNM came in the examination room after the x-ray and
told me that my baby was probably a girl and almost certainly doomed to die,
before birth, as a stillbirth or to die shortly after birth. What I thought
was twins or triplets was an over abundance of amniotic fluid because anencephalic babies often
cannot swallow the fluid as normal babies can. My dear daughter lacked a
cranium, had a rudimentary brain stem. They showed me pictures of medical texts
of anencephalic
infants. Lacking a cranium, the skull stops above the orbits of the eyes.
Whatever brain there was there would be fully exposed. The pictures they showed
me were of babies who were obviously long dead and very deformed. They had long
arms and legs, sort of looking like frogs, I was stunned! It took some time for
me to look at those pictures, yes thinking this was like having a "circus baby",
as the term for anencephalic infants back then was "monsters".

At the time abortion was legalised , to save the life of the mother or the
mothers mental health. The MD and midwife told me that I should get a letter
from a psychiatrist who they knew, and terminate the pregnancy as it was
hopeless. They said I could easily be admitted to University Hospital in
Madison,Wisconsin, USA and that the psychiatrist would sign a letter. I would
take less than 24 hours to complete tge process, then I could be on my way. My parents
knew I was pregnant. They both advised abortion. My sister, a year younger than
I, also said I should have an abortion. I am Jewish(reform) by birth on my
mothers side which is a very liberal enlightenment sort of religion in which
both agnosticism and even atheism are allowed, more of an ethical way of life,
meaning to do good on this earth and leave the after life to God. My father is
Presbyterian, Protestant, and liberal. My family, thus were "free-thinkers" and
inclined to see my unborn child as a deformed growth and not as a real child.
They acted as good parents, out of love for me, but never believing I was having
a real baby. It was a fetus. They were protective. But I had felt my baby
flutter inside me. My daughter was very real to me, and in my heart, I knew she
was a little person who was simultaneously doomed (as we all are to eventual
death) and loved into life.

Unfortunately for my family, I became very stubborn and told everyone
to just leave me alone. There was no way I was going to abort this baby who was
a real person to me in her own right. I became very angry at the OB-GYN and told him to leave
me alone too. I would resolve this with the midwife. I told the MD I never
wanted to see him again. Luckily, the MD actually respected my decision and
stayed in the background. The midwife, Lois, who had advised the abortion out of
concern for a young woman, followed me throughout the pregnancy.



I will post part 2 in the morning. I will also post the winners of my giveaway so if you have not entered hurry up and do so. Good luck!

Tuesday, June 16, 2009

Just a little thank you...

To everyone who takes the time to read this little blog about a special little boy named Logan. So in appreciation for all the sweet and caring comments you all leave me I would like to have a little giveaway today.


Just a little something to pamper yourself with.


Bath & Body Works® Signature Collection
Pampering Bliss
Sweet Pea®
Cleanse, then hydrate with the perfect pairing of our Bath Bar Soap, 4 oz.,
and Body Lotion, 2 oz. Gift also includes a soap sponge specially designed to
fit our bar soap. Imported.
Our original, award-winning Sweet Pea® fragrance
is a fruity floral scent that evokes the intoxicating, floral-infused breezes of
the Mediterranean
Key fragrance notes: Sweet Pea Petals, Watery Pear,
Freesia, Fresh Raspberry, Soft Musk
Place Bath Bar Soap in sponge pocket and
lather up


So all you have to do is leave me a comment telling me how you found my blog. Leave another comment for an additional chance to win if you are a follower. Winner will be picked by random.org and will be announced Thursday night or Friday morning.

Saturday, June 06, 2009

I used to get upset at the sight of babies...

Now its 4 year old kids that get to me.

Just now I was looking through a friends 4 year old daughters birthday pictures when it hit me. Logan will be 4 soon! He is not a baby anymore. He is a little boy. I guess because he was a baby the last time I saw him I have always thought of him that way. This is really the first time I have gotten upset seeing older kids doing things Logan should be doing. I don't know why? I have 2 good friends who were both pregnant the same time I was pregnant with Logan and I never really look at them and think Logan should be playing with you two. Which is weird...I just now figured out why I don't do that.

After we found out Logan was sick I told my friends I could not handle being around them and their perfectly healthy newborn babies. I stayed away from them for quite a while. Their babies were out of the newborn stage before I felt comfortable enough being around them. Since then I have tried to block out the thought that their babies are the same age as Logan. I think its easier on me than to constantly look at them and get upset because they are here and my Logan is not.

So it hit me like a ton of bricks tonight looking at these 4 year old birthday party pictures. The pictures were so cute, all the kids were having so much fun. It made me think of my nearly 4 year old boy and it made me sad. He should be with his mommy. We should be having a fun 4 year old birthday party too.

Friday, June 05, 2009

Passionate Blogger Award



I got a passionate blogger award from Carleighs mommy Holly! While I wish I could think of more things to blog about, sometimes I just don't feel all that creative! I am just glad this blog is here to help others learn about anencephaly and support others on the same journey.


With this award I get to share with you 5 things that I am passionate about, besides blogging. Then I get to give this award out to 5 fellow bloggers that I enjoy.


1. I am passionate about my kids. All of my kids. Jake, Logan, and Chloe are all equally important to me and try to appreciate each one for their wonderful and individual qualities.

2. I am passionate about educating women about the importance of folic acid before becoming pregnant. Over 50% of pregnancies are unplanned so it would be wise for every woman of child bearing age to take folic acid even if you do not plan on becoming pregnant. Daily folic acid can decrease the chances of NTD by up to 70%.

3. I am passionate about equal rights for ALL people. I don't care what color you are, who you love and want to be with, I don't care who you do or don't worship, and I don't care how much money you have! Everyone should be equal and given the same rights as everyone else.

4. I am passionate about giving back. I don't have a lot to give, but I will give what I can. Helping those who need it should be an automatic. You never know when you might be the one needing help.

5. I am passionate about learning healthy ways to take care of my family. I am constantly trying to educate myself on what we put into our bodies and our children's bodies. I am making an effort to research things more. These things include-the foods we eat, the meds we take, the shots we get, the things we clean with, the items we use in our everyday personal hygiene.


The 5 people I would like to pass this award on to are all anencephaly moms.

1.Celia Mommy to Noah

2. Misty Mommy to Isaac.

3.PJ Mommy to Seth.

4.Tiffany Mommy to Emma

5.Myah Mommy to Faith.


Again thank you Holly for giving me this award. :)



Saturday, May 23, 2009

Smile.

Photobucket

I was looking through some of my Logan pictures and this one was too cute not to share. This is Logan right after his bath. He looks like he has a little smile on his face. I am still trying to figure out how to take scenes from his DVD and upload some short clips here. There are some really cute ones. Maybe tomorrow I will get it figured out.

I have been missing him so much today, hopefully it wont be raining tomorrow and we can go out to the cemetery.

Good night.

Sunday, May 10, 2009

What Grieving Moms Want for Mother's Day:

When I lost Logan I already had a living child. Mothers day is not as weird for me as it may be for others. I have living children here to celebrate this day with, but some mothers have lost their only children. Today is a very painful day for many mothers. I just wanted to say that I am thinking of all of my baby loss Mommies today. Even though your babies are no longer here, you are still a mother and you deserve recognition just like the rest of us. I know today may be very painful. I will be thinking of you!

www.thecomfortcompany.net has issued a list of ten simple ways to reach out to a grieving mother on this difficult holiday.

1. Recognize that they are a mother: Offer a hug and a "Happy Mother's Day". Send a card to let them know you remember they are a mother even though their child is not with them physically.

2. Acknowledge they have had a loss: Express the message, "I know this might be a difficult day for you. I want you to know that I am thinking about you.”

3. Use their child's name in conversation: One mother responded, "People rarely speak his name anymore, but when they do it’s like music to my ears".

4. Plant a living memorial: A tree or rose bush, like memories, will grow in beauty as the years pass.

5. Visit the grave site: Many mothers felt that it was "extremely thoughtful" when others visited their child's grave site and left flowers or a small pebble near the headstone.

6. Light a candle: Let the mother know you will light a candle in memory of their child on Mother's Day.

7. Share a memory or pictures of the child: Give the gift of a memory. One mother wrote that the "greatest gift you can give is a heart felt letter about my child and a favorite memory with them".

8. Send a gift of remembrance: Many mothers felt a small gift would be comforting. Suggestions included: an angel statue, jewelry, a picture frame, a library book or toy donation in the child’s name or anything personalized.

9. Don't try to minimize the loss: Avoid using any clichés that attempt to explain the death of a child. ("God needed another angel.") Secondly, don't try to find anything positive about the loss ("You still have two healthy children").

10. Encourage Self-Care: Self-care is an important aspect of the "healing the mind and spirit effort" according to several mothers. Encourage a grieving mother to take care of herself. Give her a gift certificate to a day spa or any place where she can be pampered.


Thursday, May 07, 2009

Under the tree...




How long have you been blogging for? Why did you start? What do you want from writing?

I have been blogging ever since Logan died, but I didn't start my blogger blog until a few months ago. I have a myspace blog I started a few months after Logan died & I had a blog on live journal I started, but didn't really like the layout of live journal.

I started my blog so I could share my son with the world, but most importantly so other mothers like me could find helpful info and support if their baby has been diagnosed with anencephaly.

I hope that my blog about Logan will also open others eyes about anencephaly. Our babies are not these hideous monsters. They are beautiful, their life is important even though it might not have lasted for very long.

Where is safest place for you to share your feelings? Is there anywhere you feel completely accepted just being however you are really feeling?

I feel most comfortable sharing my feelings at my online anencephaly support group. Every member there has either lost a baby to anen. or is currently carrying a baby to term with anen. I know no matter what I can talk about my feelings & vent and most everyone there will understand and know xactly where I am coming from. I cant tell my family or friends certain things about my grief because they just wouldn't understand. I am not saying that is a bad thing, because I would not expect someone who has never been in my shoes to understand my grief and pain. I am so grateful for this group. I don't think I would have been able to make it without them. Now I am able to support mothers who are new to this grief and pain. It makes me feel like I am honoring Logan by being there for mothers who are in the same position I was in 3 years ago.

Can you recommend any books that you have read that have given you a new insight, hope or courage in this new life you find yourself in?

No. Not really. Reading other mothers stories have helped me the most. Knowing I am not alone in my pain has helped me. Reading blogs of other mothers like me has been my therapy.

How would you describe yourself before you lost your baby. How have you changed, who are you today?

I guess before I lost Logan I was ignorant to the fact that every birth ends with a healthy baby to take home as a result. I knew sometimes women had stillbirths, but that's different than a baby being born with a birth defect. I took so much for granted. Small things would piss me off. I would get angry at my son over dumb things. One of my good friends lost her twin babies and I didn't even acknowledge her loss because I didn't know what to say...

Then when Logan died everything was different. Little things did not matter anymore. I found out how lucky I was to have my living son and I started toexamine the way I parent. I made it a point to make sure my son knew every single day how much I loved and cared about him. I decided to start letting go of the little things and just enjoy him for who he is. I wanted to enjoy my time with him and not focus on the things he did wrong, but focus on the things he did right.

When I found out Logan would not live I called me friend and told her how sorry I was for not saying anything to her when she lost her babies. I finally knew what it felt like to have everyone ignore the factthat your baby had died. I felt horrible for the way I had acted just a few weeks before. I was able to comfort others during their time of loss instead of ignoring them and pretending nothing happened...

I have always been kind of dark and sad person, but even more since then. I could go days without saying a word to anyone else (other than my kids) and that would be just fine with me. I withdrew from society for a long time...I found pain pills to numb my pain. I became an addict.

In other ways I feel like I am a better person. I enjoy my children more now. I feel Logan has made me into a better mother. Being with my kids seeing them happy is my drug now.

How do you think you are coping? Do you see any light in this road or is it all dark right now? Where do you imagine yourself to be in a years time?

3 Years later I think I am coping well. If you would have asked me that about 2 years I would have said no. I am not doing well at all. Today I think I am doing pretty good. I still have sad days, I still miss Logan more than anything, I still break out in tears from time to time, and I still wonder why.

I am able to function now. I am not constantly sad and crying. The days are so much easier to get through. I know its ok to happy. I don't HAVE to be sad. For the longest time I thought that I HAD to be sad. If I was not sad then Logan might think I was "over him". I know it sounds crazy, but that is how the mind of a mother in grief thinks. I didn't deserve to be happy if I couldn't have Logan. I didn't want to be happy either.

It took me a while to get out of that place of sadness. Becoming pregnant with my daughter Chloe brought me out of that hole I was in.
Click here to go under the tree. About the questions-
The concept of human existence is reflected in the life of a tree. From
birth, death and rebirth, to the search for truth, beauty and enlightenment.
Whatever your personal beliefs are regarding whether or not God exists, one
thing we all have in common is the ability to extend compassion to others and to
feel gratitude, to be thankful for sharing in the the miracle of life, to
respect, if not to love, all fellow inhabitants of our Earth.
Native North
Americans know trees as our standing brothers and sisters. We walk while they
stand. We constantly move and change while they always remain the quiet centre
of just being.
A tree represents the female side of the divine. In
pre-hieroglyphic scripts from ancient Egypt, the word for giving birth is
derived directly from the word for tree. The tree of life represents creation,
all encompassing, all birthing and all healing.
The living wisdom of trees
tells us that we are all traveling together though the cycle of life. Learning
starts with listening.
After coming up with the idea of starting a discussion
spot here on Love Reign Over Me, I had a vision of a tree. This tree was on the
top of a hill. Women from all over the world would meet under it to watch the
sunset on the last Friday of each month. They would all have in common a great
loss. A loss of life. They would all talk amongst themselves. They would share
their hearts and tears and they would welcome each new mother that would make
her journey to the top of the hill where the tree would stand. As the sun would
set over the horizon they would pause in silence to remember their beloved
children.
I have visioned that the tree would be cherry tree with luscious
pink blossoms. The cherry tree represents birth, death and rebirth. For you the
tree might be an old Oak or and Ash tree. What ever it is that you imagine it to
be this place will have the same meaning. A place for hope, healing, acceptance,
support, and most importantly a place to just be.
So my plan is this. On the
last Friday of each month I will post a few questions on here. If you would like
to be a part of this support network you can copy and paste the questions to
your own blog. Once you have answered them you can copy and paste the link from
your blog in a comment here for others mothers to find you. If you don't have a
blog and would still like to take part you can leave your answers in a comment.
Like I wrote in the poll above, I find that my work in the names site introduces
me to so many newly bereaved women who have blogs with no readers and zero
comments, which means no support. I want that to change.
So if you would like
to, come in here on Friday and sit under our tree and share your heart with
other women who understand.
If you have a particular topic that you would
like to be discussed you can email me at lovereignoverme@live.com or simply
leave a comment.
My prayer is that this tree grows tall and strong. I pray
that its branches reach around the world and drop petals on women who are
looking for something deeper.
Below here you can find what gatherings have
happened so far
UNDER THE TREE -
FEBRUARY
MARCH
APRIL
http://scarletriver26.blogspot.com/2009/02/tree.html

Tuesday, May 05, 2009

Wanted to share my tattoo...


I just realized I have never shared the memorial tattoo I got for Logan. His father and I went a few weeks after his birth and I wasn't sure what I was going to get and the artist who has done several of my other tattoos drew this up for me and I immediately fell in love with it. His father got a tattoo with Logan's name and dates above a Celtic cross since he is Irish. Soon I plan on getting all 3 of my kids foot prints tattooed somewhere..possibly on my back. This photo is a little blurry and really doesn't do the tattoo any justice, its pretty large and the colors are very bright.

Wednesday, April 22, 2009

March for babies 2009 pictures.

Well we had a great walk and I am finally getting around to posting photos. Once again I have to thank all the wonderful people in my life who sponsored Team Logan. We were not the winning family team again this year, but that is ok the winning team was a family to a preemie and they raised over 4000.00! How wonderful of them!! I don't feel so bad we did not win because they had several family members there to raise money and walk with them. I on the other hand didn't have anyone from my family there with me this year. I was a little sad no one from my family was able to come out this year for us, but I understand people are busy and times are hard on everyone. Hopefully next year will be better and more of Logan's loved ones can come support us in this very worthy cause. My best friend Leslee had planned to come out and walk, but she became ill the night before and could not make it. So it was me, Daniel, Chloe, Daniels ex-wife Samantha, and Daniels kids RJ & Emma. How funny is it that none of my friends and family were able to make it, but my fiancees ex-wife wanted to walk with us? I am happy thought that we have the type of relationship where we can do things like this together and its not weird or awkward.

Another thing is the wonderful support I got from my "online" friends. Several people I have never met and only know them from support groups and other mom boards I post on sponsored us and that is where the majority of my sponsorship came from. I know I have never met any of these mothers in real life, but they are amazing. I cant thank them enough for all they have done to help me get through the rough times I have had these past few years. I feel closer to some of these women than I do to people I have known in real life for several years. So I hope you all know how highly I think of each and everyone of you. I hope one day we can all met each other because I want to give each and everyone of you a huge hug for all the love, support, kindness you all have shown me. You know who you are! :)

Here are a few pictures from the walk. The only thing I was a little upset about was the organizer this year made no effort to speak to the family teams. The last 2 years we have walked the organizer always made an effort to talk to us, ask us about Logan, and given us several items from the March of Dimes. I don't need to be given anything because that is not why I do this, but you know its the family teams that should matter the most. We usually have a reason and a story behind the reason we are walking. She was too interested in the business that were there with their teams.I am thinking about writing her an email about how I feel


Daniels ex-wife Samantha.





The annual Creek bank festival was the same day as the walk there at the park and there were several booths set up with crafts and yummy food! I bought some pure Alabama honey (made right here in my town), some homemade goat cheese spread from a booth set up by a local farm. Chloe stole some strawberries from them.lol. I also bought some fried apple fritters, cream cheese pound cake, and a few other food items. We bought a few plants from a lady, she was so sweet and gave us a Japanese Maple tree that was about a year old for Chloe.

Chloe did not feel that well, but she did great.


All the kids on the fire truck.

Chloe with the fire dog.

RJ & Emma with their balloon animals.


So it was a beautiful day and Logan was heavy on my mind. I miss him so much. I am so proud we were able to raise 535.00 in his memory. I will do this walk for my son until I am too old and crippled to walk.

Friday, April 17, 2009

March for babies walk is in the morning!!

So my walk is in the morning and I am so excited!! I cant wait. We were able to raise 530.00!! I have so many people to thank!
My fiancee Daniel.
My Aunt Sharon.
My cousins Bob & Linda.
My sister & Logan's Aunt Jackie
Logan's Aunt Heather.
Daniels Aunt Suzanne.
Daniels mother Remona.
Daniels life long friend Angela.
My good friends April & Leslee.
My wonderful friends-Brenda,Karyn,Jessica H.,Ashley,Caitlyn,April,Michelle,Stacy,Melinda,Jessica M.,Raelynn, Holly,Laura & Shannon.

I hope I didn't miss anyone!! Thank you thank you thank you! All this would not be possible without all of you! I love you all so much. I have never even met half of you, but I consider you all my very good friends. It kinda makes me sad that some of my friends in real life who were there to met Logan while he was alive and know how much this means to me have not even asked to walk with me (much less sponsored me)....I know a lot of people are busy or whatever, but this is really important to me. This is one of the only things I can do for Logan. I am not mad at anyone, just a little sad that I get more support from friends I have never even met in real life seem to care more about this. Again I am not mad, just wish I had a little more support from some.....I was actaully surprised to raise as much money as I have, times are tough and money is really tight for a lot of people. It means a lot to me to know that even with times being as hard as they are there are still people who care & have huge hearts. Ok now I am tearing up.....

Here are a few pictures from our 2007 walk. I didn't walk in 2008 because I was huge and miserably pregnant with Logan, but my friend April walked for him. :) I was not able to get any pictures of my 2006 walk. It was just me and Robert.
Aunt Heather, Me, Daniel, Aunt Hope, & Jake.

Granny in the middle. She is wearing a shirt with Logan's picture.

We are all so proud to win favorite family team for "Team Logan".

The finish line. Look at the face Jake is making! Priceless!


Its not to late to give if you would like.

Love,
Nicole

Tuesday, April 07, 2009

My Beautiful Baby Boy

Mommy trying to sneak a peek.
Less than an hour old.
My little Pooh Bear.
Big YAWN!
Precious face. How could you not think he was beautiful?
I am so proud of him.

Monday, April 06, 2009

The troll........and some great news.

I doubt they come back and I will probably delete the post I made in response to them because this is a place for me to talk about my son and not a place to fight with some troll loser. Thank you to everyone who made so many kind comments. I know I am a wonderful mother. I know that I am justified in all of my feelings because I was and I am still in mourning. No one can tell the right or wrong way to grieve over the loss of my son.

This is my journey and my emotions. I will admit that some may find my thoughts and feelings odd or morbid, but that's my life. I wish I didn't have thoughts and feelings like I do, I wish I had a chubby little 3 year old boy here to blog about all the wonderful and wild things he is doing, but I cant. I have to blog about his short life and his death. Some people just don't get it & I am glad. If you don't get it then that means that you have never experienced the terrible tragedy of losing a child. As much hate and ill will I feel towards the person who wrote these things to me I would never in a million years wish them the pain I have known.

I started this blog as a tribute to my son and a place for those who are going through the same thing I went through to find help and support. I started this blog because I love my son and I want to share him with the world. I started this blog because there are mothers who were just like me have have just been given the heartbreaking news that their baby will not be able to live long after birth and they are confused and don't know what to do or where to go for help. Those are the reason I have created this blog.

Know this one thing troll-I believe in karma. It catches up with you. I am a big girl and I can handle anything thrown my way. Talk about me and call me a bad mother, go ahead I know that I am not. Bring my child into it and buddy we have problems. I am a tough Southern girl and I can brawl with the best of them if need be. Don't mess with me. Don't mess with my kids!

Oh and I changed the settings on my blog. No more anonymous comments! You must be a registered user to post a comment on my blog and I will be moderating the comments before they are published. Hopefully I don't have to worry about this happening again, but there are a lot of crazy people out there so you never know.


Now for the good news!!!

I have officially passed my goal for the March of Dimes!!!! I have raised a little over 300.00!! Such a wonderful feeling knowing I have so many people who care about me and Logan that in a very short time I have been able to reach my goal and then some. I am so proud and thankful for every ones help. There are wonderful people still in this world and I know a few of them ;)
You guys are the best and I couldn't ask for more! Thank you so much!

Saturday, April 04, 2009

These comments where left on my blog today..I am furious!!!!

```So some "anonymous" person left 3 comments on my blog posts today. Lets just say I am fuming mad. After you read them you will know why....I am going to have to censor myself in the response to these comments that were made to MY blog about MY son who is DEAD.

Anonymous has left a new comment on your post "My heart is hurting for you my Logan...":

I'm sorry for your loss, but seriously - your attitude is really offensive.

First of all, the way you talk about Logan's body being taken away, whether it was sliding around - that was not a living being. That was not your son. You couldn't have treated it better than the funeral home person. It didn't feel anything. It was a lifeless shell.

Also, that you imply you are a better mother than other woman who have healthy babies. To think that you would begrudge other women their children - how could you do that when you've suffered such a loss yourself? You are not better than any other mother. That is so arrogant and wrong. And attachment parenting? That makes me think you would be a terrible parent.

And lastly, there is the background image on your blog. It shows a photo of a perfect-looking, angelic baby. Encephaletic infants look nothing like that. They are terribly deformed. Why would you choose an image of a perfectly formed baby to reside on a web page dedicated to your deformed baby? It's disingenuous at best, and insulting to your deceased baby at worst.

I'm very sorry for your loss, but your attitude is alarming.


OK so my attitude is offensive...to who? You? You think I care if the attitude I have about MY SONS DEATH is offensive to you or anyone else? Who the hell do you think you are coming on my blog about my son and leave these comments. I am shaking in anger. I am guessing you have never lost a child. I am guessing you have nothing better to do than to leave hurtful comments on the blog of a mother who has lost her child. You are a pathetic loser. Get a life.

Don't tell me I couldn't have treated his body any better than the funeral home. I am his MOTHER! No one could have cared more for him than his mother.

Now I never implied that I was a better mother than any other mother who has had a healthy child. What I was trying to say is women get pregnant & have babies every single day and could care less about them. Babies are abused and neglected every single day. Do I think I am a better mother than them? Hell yes I do. I love my children with every inch myself and would never do anything to hurt them. Everything I do is for my children and yes I think that does make me a better mother than those who don't give a crap about their children and abuse & neglect them.

Yes attachment parenting. Do you even know what that is???? You idiot. Why would me practicing attachment parenting make you think that I would be a terrible person? You having said that makes me think you are an idiot who has no idea what they are talking about. Google it you jerk.

So if you would have actually paid attention to the back drop of my blog you would notice that it is the FACE of a baby. You see eyes, lips, and a nose. Did you happen to see all of the pictures on my page of my son? He is beautiful! Yes he has a deformity, but with his cap on he looks just like any other baby. You think I don't know what anencephalic(not
Encephaletic as you wrote while you know so much about this you could spell it right)babies look like? I help run a support group for mothers of babies with anencephaly. I have seen more pictures of anencephalic babies than most. Not to mention that my own son was born with it!! Your stupidity is alarming at the least. Who the hell are you to tell me what pictures I can use on MY blog??? My deformed baby is more beautiful than you will ever be.


Next comment-
Anonymous has left a new comment on your post "My boy could suck his thumb!":

So ultrasound pictures are so hard to tell what is what, but you expect students who are learning to determine the issue? Why didn't you go get an ultrasound done by a seasoned doctor, rather than a learning student, if you're going to get so huffy about it?

Seems to me you want to point the finger at everyone you've come into contact with. Would the outcome have been different if the learning student had detected the deformity earlier on?

Stop being so hostile and judgemental towards people who's job it is to help you.

I did not expect the student to tell me anything. I simply said that I wondered why he did not say anything to us. I know for a fact that he knew something was wrong. He is studying to be a U/S tech do you think he didn't notice when there was not a BIG ROUND SKULL on the baby??? I went to the college to get the u/s done because I was excited about my pregnancy and I was anxious to know the sex of my child. Nowhere in my post was I getting huffy about them not telling me there was something wrong with my baby. I just wondered why they didn't tell me. There could be several reasons why & I wondered what the reason was.

Where in my post did I blame anything on anyone???????? Who am I pointing fingers at? I wish I knew who you were. I wish you were not a coward and would have left at least an email address and a reason you chose to my blog to pick on. Does it make you feel better about yourself to know that you made a bereaved mother cry? Do you feel like a better person because you have shed your words of wisdom on this terrible mother? You know sooooooooooo much more than I do about grieving over the death of my son. I wish you would have come to me sooner than this so I would have known the proper way to grieve over my loss. I cant believe that I have been so selfish, arrogant, huffy, hostile, & (did I miss anything else you called me?) over the death of my child. Well now that I have read your comments my life will be different. I am so sorry I offended you with my grief. Please let me apologise for that. How awful it must have been for you to read my blog about my dead baby, since it was so offensive and all.

Oh and I saved the best comment for last-
Anonymous has left a new comment on your post "No regrets.....":

You wanted more time to sleep with a corpse? That's sick.

That was my son you jerk!!!!!!!!!!!!!!!!! How dare you!! I hope you never ever know the pain of watching your child die and wanting nothing more than one more second with them. How did you find my blog? Have you gone on the other mothers blogs I have listed and left these types of comments? You better not have. There is a warm place in hell waiting for you.
I probably should not give you the satisfaction of knowing how much I am hurt by these comments.
After reading your comments I am highly upset. I was shaking in anger, I was crying, I could not think of anything other than wishing I knew who you were & where you were. You obviously have no life. You are scum. You have nothing better to do than to come on MY blog about MY SON and MY feelings and tell me what a terrible person I am???? Get a life. This is a place for me to share my feelings and my memories about my son. You are trash. Stay off my blog. Next time you have something to say about what I have written you can be a man (or woman) and write me at nickelpicklemom@gmail.com

I have so much more to say, but I am exhausted now. I have spent way too much time on you as it is. You didn't deserve this response, but it would have ate me up inside if I did not tell you what a low life loser I think you are. You need to find something better to do than leave hurtful comments on a bereaved mothers blog.


Edited to add- Oh I missed some more!!! Wow!!
Anonymous has left a new comment on your post "20 Things parents of ^ angels ^ wish you would rem...":

The world doesn't revolve around you. Who are you to dictate how others should respond to your tragedy?


Anonymous has left a new comment on your post "Yes it was hard..but worth it all.":

What kind of mother are you? How do you think your living children would feel about you saying that the happiest hours of your life were spent with their brother? I bet that won't make them feel inadequate.

Oh I am sure that the 2 living kids that I see and love every single day will be so upset to hear that I thought the 33 hours I had with their brother were SOME of the happiest hours of my life. They will be in therapy because of it I am sure. I am wondering what your parents did to you to make you feel so inadequate?? There had to have been something terrible done for you to be such a prick.

Just when I thought it couldn't get any worse the idiot just keeps on. I guess I was so upset about the 3 comments I read that I didn't notice there were 3 more that were just as bad. I had already written this post and by the time I got to these I just laughed. I laugh at these comments because they are just so ridiculous. Its almost like you know me IRL and have some awful grudge against me. I don't get why you spent so much time reading my blog and then nit picking and telling me how terrible of a person I am. I really don't get it. What a coward you are. Hiding behind your computer probably in your parents basement somewhere picking me a part.

I would love to know why? There are many many blogs out there that are similar to mine. Lots of bereaved mothers are blogging about their experience and the their loss. Why did you pick my blog? Your real life must be so inadequate. Did you wake up this morning and say to yourself you know what I think I will find a blog a mother has written about the death of her child and then I will tell her how terrible she is.Yes! Exciting day! What a heartless SOB. I really feel sorry for you. Get help.


Friday, March 27, 2009

My heart is hurting for you my Logan...


I have been really emotional these last few days. I have been thinking about Logan a lot lately...a whole lot. You know usually when I think about Logan I think of the happy memories I had with him. The first time I heard him cry, the first glimpse I got of him, the first time I touched his sweet, chubby cheeks! I remember those moments and I smile. Those are some of the happiest memories I have....I try to stay positive and not let the pain and sadness over take my life again like it used to. I have a family and living children who need their mommy to be OK & not laying in bed curled up in the fetal position crying all day because her baby is dead. That used to be me. All I wanted to do was lay in bed and cry. All I wanted was my Logan and my arms ached to hold him.

Just a warning that the following maybe hard to read for those who are still carrying their baby...

The past few days I have been thinking a lot about the really hard, gut wrenching painful memories I have.I think about D-day (diagnosis day). That was supposed to be one of the happiest days of my pregnancy. I had been anxiously waiting for 20 weeks for the day when I would find out if I was having a boy or girl. I never in a million years would have dreamed that the doctor would call me into his office to tell me my baby had a fatal birth defect. I think about the first time I googled anencephaly and the horrible images that I saw. Dead babies missing part of their heads. It was like something out of a horror movie. A nightmare. I wish it had been a nightmare & I was going to wake up and everything was going to be fine..

Another really hard memory that keeps popping into my head is when the man from the funeral home came to get Logan after he died. He didn't say a word to us, he just walked in, placed a large black bag on the bed & I had to place my dear son in that bag. He closed the bag and walked away.....I should have never let that man take my baby! I should have ran out in the hall and taken my baby back! I could have spent just one more night with Logan. I could have lovingly carried him to the funeral home myself. Instead some strange man in a suit took my son in some black bag. Did he take good care of my son? Did he make sure he did not slide around on the ride there? Did he think my son was some freak of nature? I hope not. These are the things that have been going through my head for over 3 years now. Haunting me now more than ever.

When I woke up the next day after Logan died I felt horrible. I thought that I would have rather died with Logan than to have to go another day without him. The doctor walked in and asked my how I was doing. You asshole! How do you think I am doing??? My son just died! Of course I did not say that to him, I just told him I wanted to go home. He never once told me he was sorry for my loss. I thought that was a little rude..So I got the OK to go home and I gathered every little thing I thought Logan might have even touched.I took everything! I still have a box with the box of wipes, ointment, eye drops, and just anything I thought had a tiny little memory of Logan with them.

Leaving the hospital empty handed was by far the worst I mean worst feeling in the world! I would have rather been beaten than to have left there without a baby. This is not right! No mother should ever ever ever have to leave the hospital after they have had a baby empty handed!!!!!!!!!!! It makes me so mad to think about it all. How damn unfair it is that I would have been the best mother in the world to Logan and he died! How come crappy mothers can have healthy babies every day???? Tell me that! Don't tell me I was chosen because I am special and that someone knew that I would love Logan unconditionally and that is why I was chosen carry him. Of course I would have loved him unconditionally! He was my baby!! I know a lot of people do believe they were "chosen" to carry a baby with anencephaly and maybe that brings them comfort...that is great for them, but to me its crap. I dont buy it. Supposedly 95% of mothers terminate their babies with anencephaly. So were they chosen as well? Why were they chosen like I was when they didn't even want to carry on with the pregnancy?
Why did I have to be chosen? Why couldn't some crappy mom been chosen and that way the baby did not have to be born to a bad mom? It doesn't make sense to chose someone who really really wanted to have their baby, who would have given the world to have this baby, who has read every single book on taking care of babies, on attachment parenting, who wanted to use only organic everything because I did not want my baby to be harmed by all the chemicals that are added to things now a days. Why was my plan not good enough?

I personally don't like to be told that there is some reason why this happened to me and while I may not understand it now one day I will. That does not make me feel better. If that is something that makes you feel better and helps you get through this than I think that is great, but it only makes me angry.What lesson or reason could be so great that my son had to die??? Could there not have been an easier way for me to learn something or to be a different person? I promise I am a quick learner. The only thing that makes me feel better about all this is to know that this type of thing happens to a lot of mothers from all walks of life. Most of the mothers I have met that have gone through this have been good people. Most have been religious, some not, but every single one of them wanted nothing more than to have a healthy baby but instead were having babies that could not live long. It just happened. There is no reason. Things like this happen for no reason. Sometimes nature fails us and things go terribly wrong. I just happens. I was not chosen there is no reason. I was just one of many mothers who have been affected by anencephaly...We didnt do anything to deserve this, we are not bad people. We were not chosen because we are special we are not saints, we are not stronger than other mothers. I know I am not. It just happened and that is the only thing that makes me feel better about it all. Again this is my personal thoughts on this, if you feel differently than that is ok too...We are all entitled to our own feelings on this.

I keep thinking about all this. I have been thinking about all this for years but for some reason it has all come back to me. I have been having painful flash backs and bursting out in tears. My heart hurts. I need my Logan. I see 3 year old and I just imagine all the fun we would be having right now!

Logan,
I think of you all the time, I miss you so much it hurts. I hope you know that I will never forget you. I will forever love & miss you. The pain will never go away, the pain of losing you. I wanted you more than I have ever wanted anything in my life. I am so sorry I could not do something to fix you.
I know that Jake, you, and Chloe would be the best of friends. I show Chloe your pictures all the time and she will know all about you! She will know about the special big brother she has. I promise you even though she has never met you she will know you.
I don't know what happens in the afterlife, but if you can visit in some way please do. I need to feel your presence right now....
Things were going good.I would think of you and smile. It has been that way for a while now. Right now I think of you and I feel like I am dying inside again. I feel like I am in 2005 and you just left me.Don't worry though, Mommy will be OK. I have to be for your brother and sister.

I hope you are proud of me. I have done a lot in your name and I want everyone to know what a special little boy you are. You are my heart.

My heart is hurting for you.

Love always,
Mommy

Monday, March 09, 2009

My boy could suck his thumb!








When I was 17 weeks pregnant with Logan we went the local college and had an ultrasound done by the students to help them learn. We were hoping to find out the sex of our baby at this visit. Our student told us he could not tell if it was a boy or girl. We did get to see Logan sucking his thumb! It was so cute. At this time we did not know there was anything wrong with him. For some reason or another the student did not tell us...


I am sure he noticed there was something wrong. How could he not? After we found out I would go back and look at the u/s pictures we were given that day & the anomaly was just as plain as day. Sometimes u/s pictures are so hard to tell what is what that I didn't even notice there was no "round skull" on any of our pictures.

So anyways back to the thumb sucking!! The day Logan was born we had a little warmer in the room with us and I would let him lay in it a minute or two when his temp would get low. Well he was laying under the heat next to my hospital bed and I was video taping him trying to suck his thumb again. These pictures really don't do the whole show any justice. I wish I could figure out how to upload bits and pieces of his video on here. I will figure it out sooner or later. So these are just snapshots I took from the video.

Enjoy! :)








Thursday, February 26, 2009

No regrets.....

I don't have any regrets about carrying Logan to term or the time I spent with him, but that does not mean that if I had to do over I would have done a few things differently. Here is a little list of those things.
1. I would have demanded more alone time with Logan.
Of course I wanted everyone to get a chance to met and hold Logan, but I wish I would have asked everyone for a little more alone time with him. My mother in law stayed the room with us the entire time Logan was alive even after we asked her to leave for a little bit so we could have some private time with Logan. Looking back I wish I would have been a little more stern with her & demanded she give us some time alone with Logan.
2. I would have kept Logan with me longer after he passed.
We kept Logan with us for several hours after he died, but I wish I would have never let the funeral home come and get him. Having to watch that man from the funeral home walk away with me little boy is one of the most painful memories I have. I could have kept him with me up until the day of or the day before the funeral. I didnt even know I could do that until I had heard of other mothers who had done this. I think it would have been nice to have slept with him one more night. 3.I would have gotten professional pictures taken by Now I lay Me Down to Sleep. Again I didn't know I could do this until it was too late.
4.As I mentioned in my blog a few days ago I would have pumped my milk and donated it to babies in need.
5.I wish I would have went to grief counseling before and after Logan's death.
I went through a very bad period after Logan died. I was mad at the world because my baby died. I think if I would have gone to counseling I would have had a little easier time dealing with my feelings.

On a happier note I signed up to do the March of Dimes walk again this year. The 2 years following Logan's death I raised money and walked for the March of Dimes and won a plaque both years for being the leading family team. I didn't get to walk last year because I was so pregnant with Chloe and I was just miserable. So I am excited to get back into it this year. I have some really great ideas on how to raise more money this year. I have my goal set at 300.oo right now, but I hope to raise close to 500.oo or more.

Tuesday, February 24, 2009

20 Things parents of ^ angels ^ wish you would remember.



20 Things parents of Angels wish you would remember

1. I wish you would not be afraid to mention my baby. The truth is
just because you never say my baby doesn't mean he or she doesn't deserve
your recognition.

2. I wish that if we did talk about my baby and I cried you didn't
think it was because you have hurt me by mentioning my baby. The truth is I
need to cry and talk about my baby with you. Crying and emotional outbursts
help me heal.

3. I wish that you could talk about my baby more than once. The
truth is if you do, it reassures me that you haven't forgotten and
that you do care and understand.

4. I wish you wouldn't think that I don't want to talk about my
baby. The truth is I love my baby and need to talk about him or her.

5. I wish you could tell me you are sorry my baby has died and that
you are thinking of me. The truth is that it tells me you care.

6. I wish you wouldn't think what has happened is one big bad memory for me.
The truth is the memory of my baby, the love I feel for my baby, the dreams
I had and the memories I have created for my baby are all loving memories.
Yes there are bad memories too but please understand that it's not all like
that.

7. I wish you wouldn't pretend that my baby never existed. The truth
is we both know I had a baby growing inside me.

8. I wish you wouldn't judge me because I am not acting the way you think I
should be. The truth is grief is a very personal thing and
we are all different people who deal with things differently.

9. I wish you wouldn't think if I have a good day I'm "over it" or
if I have a bad day I am being unreasonable because you think I
should be over it. The truth is there is no "normal" way for me to
act.

10. I wish you wouldn't stay away from me. The truth is loosing my
baby doesn't mean I'm contagious. By staying away you make me feel isolated,
confused and like it is my fault.

11. I wish you wouldn't expect my grief to be "over and done with"
in a few weeks, months, or years for that matter. The truth is it
may get easier with time but I will never be "over" this.

12. I wish you wouldn't think that my baby wasn't really a baby and
it was blood and tissue or a fetus. The truth is my baby was a human life.
My baby had a soul, heart, body, legs, arms and a face. I have seen my
baby's body and face. My baby was a real person.

13. My babies due date, Mothers Day, celebration times, the day my baby died
and the day I lost my baby are all important and sad days for me. The truth
is I wish you could tell me by words or by letter you are thinking of me on
these days.

14. I wish you understood that losing my baby has changed me. The truth is I
am not the same person I was before and will never be that person again. If
you keep waiting for me to get back
to ""normal" you will stay frustrated. I am a new person with new
thoughts, dreams, beliefs, and values. Please try to get to know the real
me-maybe you'll still like me.

15. I wish you wouldn't tell me I could have another baby. The truth
is I want the baby I lost and no other baby can replace this baby.
Babies aren't interchangeable. Besides, you do not know whether we have
fertility problems too.

16. I wish you wouldn't feel awkward or uncomfortable talking about my baby
or being near me. When you do, I can see it. The truth is it's not fair to
make me feel uncomfortable just because you are.

17. I wish you wouldn't think that you'll keep away because all my
friends and family will be there for me. The truth is, everyone
thinks the same thing and I am often left with no one.

18. I wish you would understand that being around pregnant women is
uncomfortable for me. The truth is I feel jealous.

19. I wish you wouldn't say that it's natures way of telling me
something was wrong with my baby. The truth is my baby was perfect to me no
matter what you think nature is saying.

20. I wish you would understand what you are really saying when you say
"next time things will be okay". The truth is how do you know? What will you
say if it happens to me again?

Sunday, February 22, 2009

What do I do with this milk I have?

When Logan was born I tried to nurse him because before we found out he was sick I had planned to breast feed him. So I wanted to at least try to nurse him after he was born even though I knew there was a possibility he may not be able to suck or swallow. He did try to nurse a little bit but couldn't quite get it down. I did express colostrum into his little mouth. It pleased me to know I could give him nourishment even if he was unable to latch on.

Well the kicker is my milk milk came in on the day of his funeral. Oh it was awful. My breast were so full, hard, its was painful and I was leaking milk & had to wear nursing pads. It was almost like a slap in the face for my milk to come in the day I was burying my son. I should have been feeding my baby with this milk. This milk is for Logan, he is gone but my milk is still here.

It was not until recently that I found out I could have pumped and donated the milk I had and it could have went to babies that desperately needed it to survive. I really had no idea it was even possible to donate my milk to other babies. Then a friend who had lost her baby was telling me she was pumping milk to send to a milk bank. The milk goes to premature or sick babies whose own mothers for some reason or another are unable to breast feed.

I found this site Madison Cassidy Program .
The gift of giving this donation(breast milk) of life through our Madison Cassady Program can be both emotionally healing and fulfilling to the grieving mother and is life saving to the receiving baby. The donation may serve as a special way for a mom to honor the memory of her baby.


You can also read more info on donating your milk from the HMBANA.

Breastfeeding is a very important thing for me. I nursed my daughter for nearly a year. I wanted to breastfeed longer, but with pumping at work and low supply it eventually got so low Chloe started to refuse the breast and weaned herself. The time I did get to nurse Chloe was one of the most rewarding experiences of my life even though she usually got mothers milk from a bottle because I had to work full time and pumped while I was away from her. So this is something I care very much about.
I didn't find out about this until it was too late for me to donate, but hopefully another mother will see this & donate breast milk to babies in need & maybe even in a small way give you some comfort during your grief because you are helping to give a wonderful head start to another baby.

Saturday, February 14, 2009

Yes it was hard..but worth it all.




When I tell people about my story about losing Logan a lot of people will tell me "Oh I don't think would have been able to do that, it would be too hard".
Was it hard? Of course it was! It was very hard carrying my son for 4 months knowing he would die. There were days when I would just stay in bed all day crying, there were days when I would yell and scream in anger because I was so mad that Logan could not live. Anytime I would go out in public people would comment on my belly and ask questions about the baby, I would just smile & nod because they had no clue what was going on.
Then most of my friends and family members would basically ignore the fact that I was even pregnant. I guess they figured I would get upset if they said anything about Logan or my pregnancy.
After I found out Logan had anencephaly I had to quit my job. At the time I was working in the death care industry and I knew there was no way I could do my job & try to comfort and help grieving family members when I was grieving myself.

Both of my best friends were pregnant the same time as me. All of our babies were supposed to be born around the same time & grow up together to be best friends. That was the plan until I found out Logan could not live. They had healthy babies and mine was going to die. It was way too hard for me to be around their healthy babies. I had to tell them that I just couldn't handle being around their babies at the time & I hope they understood. One of my friends understood and told me to let her know if I needed her & gave me time to grieve, my other friend did not understand & our friendship ended on a sour note.

There was a lot of heartache and pain during those 4 months of waiting for Logan to be born.

Let me tell you about the good things.
After the diagnosis I cherished every single kick I felt from Logan. Logan was such an active little boy and he liked to move.

When Logan was born he was the most beautiful baby I had ever seen in my life. He did things in his short time alive that I was told be would never do. He cried, wet his diaper, sucked his thumb, yawned a million times, and tried to nurse. Anytime you messed with his head too much he would cry which proved to me he could feel. He gasped the first time I put a washcloth on his chest to give him a bath. I video taped him trying to find his thumb to suck on. I was told Logan would be brain dead. That he would be deaf, blind, and unable to feel pain.

I got more joy in the 33 hours with him alive in my arms then I have had in my entire life. Every tear I cried those 4 months & all the pain I felt was worth it. I had to endure 4 months of hell and got the best 33 hours of my life. It was worth every second of it.

Had I gone with my initial thought to terminate my pregnancy I would have cheated myself out of all of that. My main reason for even considering early induction was because I didn't think I could handle carrying Logan to term. I didn't think I could handle people asking about my pregnancy. But I did handle it.

Don't tell me I was able to do it because I am stronger than others because I am not. I am no stronger than any other mother out there. I am just a mother who wanted to be able to spend every second possible with my son. I had to have time with my son alive. I knew if I carried to term I would get that chance. That may sound selfish, but it is the truth. Most mothers who carry to term after a negative prenatal diagnosis do so because they are religious & they are strongly pro-life. I am not religious and I have always thought of myself as pro-freedom. I had always said I would keep my child if anything was ever wrong with them mainly because I always felt that I would love my child no matter what & if there was something wrong then I would just deal with it.

My goal here is that someone who is still deciding what to do after a negative prenatal diagnosis and are afraid it will be too hard to carry to full term will read this and think this woman could do it, so can I! I am not stronger than others, I am not religious, I am not strictly pro-life, and I had doubts on whether I could do it myself.

I want you to know that you can do it! I am part of a support group for mothers like us who helped me so much during my pregnancy and after Logan died. I would have been lost without this group of women. Anencepahly Support. We can be there for you if you need support, have questions, want to vent, or just want to listen to others. It really is a wonderful group, I wish none of the ladies there had any need to be there and that they all had healthy babies instead.

So the point is I dont regret one minute of carrying Logan to term, I would do it over in a heartbeat, I am so glad I made the choice to continue, and I want other mothers to know yes it is hard but the reward of getting to love and bond with your baby is worth it all.

Monday, February 09, 2009

Just A Thought…A Clean House


Just A Thought…A Clean House
By: Traci Cooley
Bereaved Mother, Tampa, Florida
Since my daughter died almost three years ago, my house is not as clean
as it once was. I used to clean constantly; even the baseboards were
dusted on a regular basis. When Malena died I just did not have the
energy to do as much housework, so I did what I could and hoped that
no one would notice the baseboards.
I also realize that my surviving children did not care how clean the
house was, but they really seemed to enjoy that mommy spent more time
with them, reading, talking, snuggling and playing. Before Malena died
I felt that a clean house and dinner on the table were what made me a
good mom. After she died, I wished for more time to read and play with
her. I changed my priorities very quickly, the house will be clean when
the children go to college or get married. I will never live in a Martha
Stewart or Better Homes and Gardens house.
A few weeks ago I was cleaning the house because guests were coming
that night. I cleaned the common areas of the house, only what the
guests would see, the rest would be hidden behind a closed door and a
hope that no one would notice that I haven’t dusted or mopped for a
while. As I cleaned, I realized that this house is now a reflection of my
life. My life fell apart when Malena died; I have worked to put it back
together. The end result is a life that seems "normal" on the outside to
the casual observer but if you look real close the hurt and pain are still
there. What the world sees is a person who has triumphed over the death
of her child, because they only glance. Those who look closely, in the
cracks and crevices where the dust settles, see that there is forever a
changed person, who will never be complete again until she is reunited
with her child.

Dictionary of Loss

Just a short list....


~A~
Abyssion, n. 1. The perception of falling that occurs while watching your loved one rise.
AfterMath, n. 1. When you count up the days you have lived without your child or the days you must yet live.

Angel Date n. 1. the day your child became on Angel. 2. Anniversary of the death of your child.
Angelversary n. 1. This word denotes the annual date of a child's death. This day is just as important to a bereaved parent as a birthday, and stillbirth parents are marking both birth and death on the same day. So it is different than a regular birthday. While "anniversary" might work, that often seems to celebratory a word for this kind of day. Angelversary is our answer to describing this most difficult day.

Apologitis, n. 1. The need to constantly be apologizing to your spouse and loved ones because you couldn't save your unborn child from death. This involves constantly telling them how you tried to take care of your baby and how much you loved and wanted that baby.

~B~

BaDahBoom v. 1. the verb Sonny used in Godfather Pt. 1 when teasing Michael. 2. the bursting out of The Creeper (see the C words) that you unleashed on some poor, unsuspecting human being. 3. the smashing of dishes for no "apparent" reason.

The Beast n. 1. grief personified 2. the monkey on your back everyone seems you think you should "get over" when you know that the loss with be with you for as long as you live. 3. synonym for cancer of any kind because this disease seems to take on a personality of its own and often takes the lives of our loved ones. -beasted adj.
Beved adj. 1. short for bereaved 2. tired, scattered, overwhelmed -- even by the simple things 3. not up to par - heck, not up to anything. Examples: "Yes, I am still in my PJ's, and yes, I know what time it is, feeling beved, back off." OR "I am taking a beved day today, no I'm not sick - I'm simply beved."

Bereft, n. 1. Those who have lost a child. i.e., just as one might say, "I am a widow" or "I am an orphan," likewise a parent whose child has died would say, "I am a bereft." (Contributor note: Wendy writes about why she chose this word and says, "...because they are bereft of the opportunity to enjoy their children's lives; bereft of the right to nurture and instruct those children through childhood and into adulthood; bereft of the friendship that might have been, the love that might have grown, and the joy that might have welled up; bereft of the incredible pleasure of having small arms wrapped around their necks, wet kisses planted on various facial features, and sweet voices saying "Mommy, I MISSED you today"; ...because a child is a part of yourself, and to lose a child is to be bereft in the deepest, most desolate sense of the word.) (Editor note: All of those reasons seem good enough for me to justify turning the word bereft from an adjective to a noun!)

Biting Reality, n. 1. The fact that whatever was once only a possibility is now the endless reality. Having had The Knowledge of the Biting Reality before your child's death, you now fully understand the total meaning and all the ramifications in your life of the Biting Reality because of the death of your child. (Author note: This is the emotional, reality knowledge that comes from first hand experience!)

Black Hole n. 1. a dark murky place where the reason for losing your child has disappeared. 2. the evil darkness that occasionally swallows you whole, especially when contemplating what really did happen to your baby.

Blame factor n. 1. the need to find someone and punish him or her for taking your baby away from you. This is often pointed at one's self. For example "If I had done ABC instead of XYZ, then my baby would still be alive." Blame factors are especially common in miscarriage and pregnancy losses where doctors cannot tell you why you lost your baby, just that 'it happens.'

Brick Wall, n. 1. what hits you when someone says to you, "Oh, I thought you were over it."
Brief,adj. 1. fleeting, short, temporary, in reference to memory and time. Time feels both brief/lightening fast, yet slug slow at the same time. (See also "Brief Grain" for futher usage details.)

Brief Grain, n. 1. a variation of Grief Brain, and illustrates how our brain function is severely affected after the loss of a child. 2. Representative of one symptom of grief: mixing up the first letters of words. (See also the individual words "Brief" and "Grain" for further usage details.)

~C~
Cemetery Posse, n. 1. a group of mothers armed with video cameras, hiding in various cemeteries in hopes of 'capturing' marauding morons stealing things from children's graves, in hopes of inflicting appropriate punishment - like that nice, cozy seat next to the fire in Hell.
Childless Mother, n. 1. A mother who has lost a child in miscarriage, stillbirth, or any other cause of death. 2. A mother whose only child has died.

Childless Father, n. 1. A father who has lost a child in miscarriage, stillbirth, or any other cause of death. 2. A father whose only child has died.

Circling cleaning, v. 1. You stand up, turn in a circle while observing and commenting on all that needs to be cleaned, then sit back down totally exhausted, without having touched a single thing. Can be applied to bill paying, cooking, writing Thank You notes, returning phone calls, etc. (Contributor note: My daughter Jen and I coined this phrase after Cassy died.)

The Clueless n. 1. folks who haven't lost a child and just don't get it.

The Clueful n. 1. folks who haven't lost a child and who try really, really hard to understand.

Cobweb Phenomenon n. 1. comparing your life to a room full of pretty things and happy times, but realizing there are cobwebs in the ceiling corners that never go away. 2. having a perfectly decent life, good job, other children you love, a solid partnership, and still feeling empty because one of your children is dead. 3. going to a party where people are lively and happy and laughing and someone asks how you are, but you know you can't really say how you are. -cobwebbed v. -cobwebified adj.

Cobwebified adj. 1. the feeling between your ears during the first and second years after your child has passed away. 2. adjective form of Cobweb Phenomenon (see Part 1 of this Dictionary) syn. Brain No Worky

Contingency Theory, n. 1. a false myth perpetrated by society that the depth of a parent's love or grief can be measured by the child's age -contingency theorist, n.

Cow-eyed Grief Virgin, n. 1. person with no concept of what bereaved parents have been through 2. person who sees putting bereavement stories in print -- not as a way to work through grief and memorialize dead children and possibly help other bereaved parents -- but instead as a "get rich quick" opportunity because as anyone knows, if you wrote a book, you must be very lucky and your life must be fabulous.

Creeper n. 1. grief anger personified. 2. the anger that resides just under the surface of your skin that may break out at the slightest bump from another human being. -creeped adj.

Dark Room n. 1. when it is sunny and nice out but you prefer to stay in with the shade drawn and the phone off the hook. 2. the feeling inside your body when you ache to hold your child again.

Denialbility, n. 1. Your brain knows your child is gone and that you'll never see him/her again, but your heart makes you look up each time the door opens fully expecting to see him/her walk in. 2. This can also apply to hearing phantom crying or having the phantom achy arms. (Editor note: Definition #2 was added by editor after Connie made this contribution to the Dictionary.)
Dream sleep, n. 1. (Contributed by Adam Small after Cassy's death.) The sleep that has the dreams in which Cassy comes to play with you [or in which any dead child comes to visit with you.

~E~
Emotional Constipation n. 1. Times when you know you need to cry and the tears won't come. Your body is aching for the tears, and somehow they are all locked up inside and you can't get them out. You've cried so many tears you're afraid you'll never be able get them out again. The best antidotes I have found for this condition are movies guaranteed to make you cry: Steel Magnolias, My Dog Skip, Ghost, Hearts and Souls--or songs like "Wind beneath my Wings", Eric Clapton's "Tears in Heaven", and anything that has a personal connection with our lost children.
Endless Ache, n. 1. What it's like to hear about new babies, other women's pregnancies and baby showers all the while wondering why your baby died. 2. The feeling you get when friends and family who know your baby died will talk to you about new babies, other women's pregnancies, and baby showers and think nothing of it. -endless aching, v. -endlessly ached, adj.
Existence denial, n. 1. the fact that people don't bring up your child because they think it will remind you of the pain, (WHATEVER! like I can forget this pain?!?) so they just plain ignore that your child ever existed.

~F~

Fall Into A Hole v. 1. To become so absorbed in grief reading/blogging/posting on message boards as to forget the the existance of time, ignore domestic or work duties and, possibly, personal hygiene. As in "I fell into a hole on the internet reading bereaved parent blogs and forgot to take a shower" or "I fell into a hole reading 'Dear Cheyenne' and didn't crawl out for 2 hours."

Fear of Love, n. 1. Knowing that love has caused you such pain through the death of your loved one, such that you become afraid to love, afraid that Death will come and steal away everyone you love until you are left absolutely alone. This may lead to an inability to trust your loved ones are safe, to constantly worry about them and to avoid starting up new relationships or continuing old relationships for fear of losing the people you love.
Fear of the Public, n. 1. This fear will hit the bereaved parent from time to time until they are afraid to go out, afraid to see people, afraid of leaving the confines of their home in hopes of avoiding more pain or having to answer questions like "When was your baby born?" or "How many children do you have?" Involves knowing that you really want to talk about your child who died with these people, but realizing that the people who ask these questions don't want to hear the answers and will give you platitudes instead of comfort.
Fetus Envy n. 1. extreme longing for the easy, worry-free, healthy pregnancies, labor/deliveries and newborns, as you seen in the people around you who have not experienced the death of a child.

FINE, adj. 1. the answer those who are grieving blurt out to the unknowing or uninvolved when asked, "How are you doing?" 2. an acronym for: Freaked out - Irrational - Neurotic - Emotional

Tuesday, February 03, 2009

Ultrasound Day July 2005

That morning, so happy & excited.
We finally find out if we are having a boy or a girl.
I really wanted a girl...
Ultrasound tech not saying much..
She says it *might* be a boy, but she is not sure...
I was kinda sad, I really wanted a girl.
Sent back to the waiting room...
I write Logan Quinn on our tape.
Our baby has a name.
Then called into the Doctors office.
Kinda weird, but ok...

Doc says "We found a serious birth defect."
I think Oh well its probably something to do with the babies heart.
They can do surgery & everything will be fine!
Anencephaly.
I have heard of anencephaly before..
This is not good.
My baby doesn't have a brain.
Induce labor now or your baby might die before birth, maybe live a few minutes.

Now we drive home...
How we got home I have no idea.
It was the worst drive home I have ever had.
I am starving.
How can you eat when your baby has no brain!!!
Everyone is waiting to know if we are having a boy or girl.
Instead of calling with the sex of our baby we get to tell them he will die soon.

Scared.
Mad.
Sad.
I pray.
I beg.
I bargain.
I plead.
I cry.
I wail.
I scream.

THIS IS BULLSHIT!!!!!!!!!!!
Maybe they are wrong..

What did I do to deserve this?
I LOVE THIS BABY!!
I feel him kick everyday!
Why me?
Don't tell me I was chosen!
I don't want to be chosen!
I want my son!!

Confused.
I dont know what to do.
There is no way I could carry this baby4 more months.
What would a baby look like at 20 weeks?
I need more info.

Googled images make me want to puke.
My baby looks like that!
I cant handle this.
I need to know more.

I need a mothers story.
Oh my goodness, that baby is beautiful!
He lived for a week?
My baby might live after birth?

I have to have that!
I don't care if it is 1 minute.
I have to hold my son alive.
That is it.
I will carry my son to full term.


By Nicole Courtney. Mommy to Logan Quinn.




'What Choice Is This?'

'What Choice Is This?'
"They say I must make a choice to terminate and have you die now, or carry you and have you die later. What kind of choice is that?
If I really had a choice you would not die at all. I wish you could stay inside of me where it is safe and warm. That would be my choice for you. When I think of making choices for you, I think of piercing your ears or not. What color dress you will wear. What school I will put you in. Not die now or die later. Dying is not a choice. Who would willingly choose death?

If your death must be, it will not be by my actions. I will have no part in it! I love you and could not be the cause of your death.

Some say it would be easier to terminate. Easier for who? Not me and not you! For them, so that they don't have to look at us with my big belly and wait for death to knock on our door. I loved you before you were sick and your being sick hasn't changed that. Hold on, sweet baby, and fight for your life.

I made my choice before you were conceived when I asked God to give me a child. I promised to love and care for you. This I will do for as long as God lets me. A choice is usually something that has two different endings. So why does my choice have only one? Your death, either way. The only choice that I have left is that I will NEVER forget. I'll love you forever, Brittany Ann."

(Brittany Ann was diagnosed with anencephaly on 4/12/94 and was born to Marylynn & Dan Kalevich and five siblings on 6/1/94. She survived for 29 minutes.)http://www.angelfire.com/ca/numberslady/page4.html

Thursday, January 22, 2009

Poem By Daddy


Constant will be your face.
Never could we replace,
you with another.
Not sister or brother.
Our time, we won't have long.
To me & Mommy you'll always belong.
Even though we'll be apart.
You'll always be in our hearts.
Yes we'll have different homes.
You'll be in a safe and wonderful place.
We will always remember your face.
And maybe in some way you'll
remember ours.
One day, before we know it,
We'll all be together, at home
again.



This poem was written by Logan's father while I was still pregnant with him.

Sunday, January 18, 2009

Why carry a dying child? A mother's perspective.

Why carry a dying child? A mother's perspective.
A mother's perspective, written by Teresa Streckfuss, Benedict Oliver and Charlotte Mary's mother
http://www.geocities.com/teesieau/whycarryadyingchild.html

Many of you may have wondered, "What's the point?"... or perhaps pitied us for 'having' to continue carrying a child who is not going to live for long... I understand these thoughts, because when my sister was carrying Thomas Walter (who had been diagnosed with anencephaly at 18 weeks and lived for 17 ½ hours after birth) I really didn't properly comprehend the whole situation. I knew it was the 'right' thing to do. I didn't question that I would have no other option if the same thing ever happened to me (although I knew it never would!) But I thought how awful it was to know for over four months that the child you are carrying is unable to live outside your womb.

A mother's perspective, written by Teresa Streckfuss, Benedict Oliver and Charlotte Mary's mother

Once he was born, I was able to hold my nephew and see him finally as a real person - a precious unique creation - I began to realise that there was a lot more to it than mere 'ethics'. When, much to my disbelief, my own baby, Benedict, was diagnosed with this same condition four years later - I was finally able to grasp it, although it has taken me a long time to be able to put my thoughts into words. It is only since Charlotte's diagnosis that I have found words that almost convey my feelings.


Some people think we carried Benedict and Charlotte to term because we don't agree with abortion, because we are Catholic, or perhaps because our nephew was carried to term after a fatal diagnosis. While these factors probably all played a part in our immediate refusal of the option to 'terminate', this is not what it's all about! It's about love! It's about our baby! It's not about some tragic, fatal medical condition - it's about our child. We do not possess more strength than other people. It's not because we can cope where others wouldn't. There is no way to avoid the sad fact that she cannot live long after birth with this condition, but causing Charlotte to die earlier will not stop this happening. Causing her to die earlier will only take from us the beautiful experience of knowing and loving her.


The tragedy is not the fact that we know our baby will die. The tragedy is that our baby will die. It is not nice to know for months beforehand, but it gives us a chance to appreciate a life so brief, and not to miss a moment.


The value of Thomas Walter, Benedict and Charlotte cannot be measured by the length of their lives - we don't apply this yardstick to adults, so why should we to babies? A baby is not a possession, an accessory to acquire. A baby is a gift, a new entity, a precious, individual soul loved by God. We are created for a purpose, there is a reason for our being here. Even if that reason is unclear to us most of the time, we are constantly affecting other people in our families, communities etc. Who knows what purpose can be fulfilled in 9 months and one day? I don't know, but God does. I do know that Benedict left a lasting impression on our family, he made us slow down, savour life, and treasure our other children even more. He made us realise that we cannot control or predict what will happen in the future, he made us rely on God. And how often are we given the opportunity to really give another person true unconditional love? Love that truly expects no return? It is a blessing to experience that kind of pure love!


So don't pity us for carrying a child we know will die. Carrying this beautiful person is an honour. Grieve for the fact that our baby will die. We wouldn't wish away the time we had with Benedict, and also this time we are now experiencing with Charlotte, just to save us the pain of losing them. I've always thought of it like this; if your 3 year old was diagnosed with untreatable, fatal cancer and had only 4 months to live; would you prefer the doctor kill your child straight away so that you didn't have to wait for his/her impending death? Or would you prefer to spend as much time as you could with your child and love him/her for as long as you had left?


Someone asked us after Benedict died, "Was it worth it?" Oh, YES! For the chance to hold him, and see him, and love him before letting him go... For the chance for our children to see that we would never stop loving them, regardless of their imperfections? For the chance to give him everything we could? Oh, YES! Love your children, and remember that they each have their own unique mission. Children are always and only a blessing from God - even if they don't stay very long...

Welcome to Holland.

by Emily Perl Kingsley


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome To Holland".

"Holland?!?" you say, "What do you mean "Holland"??? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy"

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills...Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes that's where I was supposed to go. That's what I had planned".

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very significant loss.

But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.

© 1987, by Emily Perl Kingsley. All rights reserved.
Reprinted with permission of the author.

Saturday, January 17, 2009

This is from my myspace blog..posted over 2 years ago.

This is from my myspace blog..posted over 2 years ago.

Sunday, July 16, 2006


long post, & sad one. :(
Current mood: sad

I posted a few pictures in my album. Mine & Roberts memorial tattoo pictures & a picture of Logan.

July 21st will mark one year since we found out our baby could not stay with us. I was 20 weeks pregnant & I had an ultrasound scheduled for that day, I was so excited I was finally going to find out if we were having a boy or girl. I wanted a girl sooo bad, I just knew it would be. Well while having the ultrasound we were told that the baby looked like a boy, I wasn't happy. We got done & a few minutes later the Dr. called us into his office, he told us that they had discovered a pretty serious birth defect. I thought he was about to tell me something was wrong with the baby's heart or something & that they could just do surgery & everything would be fine. He said your baby has anencephaly, missing most of his brain its incompatible with life, 100% fatal, he wont live more than a few minutes,hours,maybe a few days, more than likely he will die before he is even born.

We were given the option to abort or carry him to full term. I didn't know what to do, I wanted for it all to be one big mistake or nightmare. It wasn't though. This was really happening & there was nothing I could do about it. No way to save my baby. That was one of the worst days of my life.

I had to tell my six year old son that his baby brother could not come home with us to live, he would have to go to heaven after he was born. He didn't understand, hell I didn't even understand why such a horrible thing had to happen to me, of all the mothers why me? Of all the people who abort their perfectly healthy babies & I wanted mine & yet I couldnt keep him.Of all the mothers who abuse their children why couldnt I have a baby & I would never abuse it, never hurt it, would give them more love than anyone else.

I decided to carry to term & I am so glad I did. I got to spend 33 hours with Logan alive in my arms. He was so beautiful & I will never forget his precious face. I am missing him terribly bad today, I guess that's why I am writing all this. It has been almost 8 months since he died & I think about him constantly. I cant stand to even look at babies. If I see a little boy around Logan's age I have to fight back tears, I just have to look away from them. It has gotten easier but the pain is still there, maybe one day it wont hurt so bad.

Where did that come from??

A few minutes ago I was just sitting here reading an email from a mother who is about to deliver her anencephalic baby & she was trying to figure out how to explain to her young daughter that her baby sister is not going to live. Then out of nowhere I just burst into tears & crying hysterically(I am sitting at my desk at work mind you)....



Logan died nearly 3 years ago & yes I miss him dearly & think about him often,but I don't cry like I used to. Now when I think of Logan I smile because I feel so blessed to have had the chance to know & love someone as special as him. I am so much more at peace now...I didn't think I would EVER be here. I thought I would forever be this sad, pissed off, grieving mother that I was. Then Chloe came along & of course no one could ever replace Logan, but she did help repair the giant hole that was left in my heart from losing Logan. When she was a newborn I would look at her & think of Logan & I would cry...I was also very hormonal at the time. Around July I always get a little sad as it is close to the time we found out Logan was not going to make it.



Other than that I have been ok... By ok I mean that I have been able to function. Of course I still miss Logan every single day, I think of him & love him just as much as my living children!! That will never ever end. But I have not been breaking down and crying all the time like I used to.



Then I read this email & I am all of a sudden thrown back to 3 years ago when I was trying to explain to Jake(who was 6 at the time) why his little brother who he had wanted so badly could not live outside Mommy's body..that his head was broken. No one should ever have to explain something like that to a 6 year old!!!! I don't know if I will ever understand why me? Why was I given a baby that could not live? What did I do to deserve this? I know I have done a lot of dumb things in my life, but I have always been a good mother. I have always put my son #1.

Questioning something I will never know the answer to. Always wondering where my son is. I don't know what the afterlife is like... I would like to think he is still with me in spirit. Or that he at least visits me from time to time.

Welcome.


Welcome. My name is Nicole & I have decided to write this blog as a tribute to my son Logan.I would also like this is be a place of comfort & support if anyone is looking for support or info.If you are here because you have lost a baby or are carrying a baby with anencephaly I am very sorry. My heart goes out to you.

Logan was diagnosed with anencephaly when I was 20 weeks pregnant with him. At first I was kinda in shock. I had no idea what to do. I had always said that I would keep my child if there was something wrong with them, but then again I knew something like this would never ever happen to me! So my doctor told me what my options were. I could go ahead and induce labor at 20 weeks, or I could carry Logan to full term. I was told that most of the time babies like this die before birth, are stillborn, or live a few minutes maybe a few hours after birth.

I was a wreck after that. I couldnt even call anyone to tell them what was wrong with Logan. I just couldnt get it out without breaking down. I tried to find info in my pregnancy books, but there was very little to no info. I tried to imagine what a baby would look like born at 20 weeks. Thinking I might go ahead and induce labor. I just didn't think I had it in me to carry Logan for 4 more months knowing he would die. The next day I got online to do some more research. I found all these stories of women who had carried their babies to full term & they got hours & sometimes days with their babies alive! I was blown away & so touched by their stories. it was then that I decided I wanted to carry to full term. I knew that I wanted to chance to see & hold my son while he was alive. I even had hopes of him living long enough to go home with us.

The next four months were not easy. I could not work. Most of the time I stayed in bed while Jake was at school. I didn't want to leave the house because everywhere I went people would ask about my baby. I didn't want to tell them o well this baby is not going to live. Telling my 6 year old son was the hardest thing ever. He didn't understand. I didn't understand so how was he supposed to get it?? He was upset that the little brother he wanted so much could not live. I went ahead and made the arrangements for Logan's funeral before his birth. I thought it would be easier than doing it after he died. I am glad I did.

On November 28th 2005 I went in to have a c-section. Logan was born & I thought he was the most beautiful baby I had ever seen! All I could do was cry when I saw him. He even cried when he was born! He acted very much like normal newborn. He peed on the doctor! Hahaha! I tried to nurse him because he acted like he was looking for the breast, but he was unable really get it down. I am glad I at least tried. For the next 33 hours we loved and kissed on Logan so much! Just a wonderful little baby. All of his family got to met him & love him. When Logan died he was in the arms of his Mommy & Daddy. It was very peaceful...I had hoped he would hold on long enough to go home, but it didn't work out that way.

I will be forever grateful for the time I got to spend with my son Logan. I would do it all over again if needed. I don't regret one day of carrying him to term. It was not easy, but well worth the pain to be able to spend those 33 hours with my son alive. I don't judge anyone for terminating their pregnancy when they found out their little one was not going to make it, but I am do glad I did not. So much I would have missed out on. The memories I would not have been able to make.

If you have any questions or just need someone to talk to please feel free to contact me.